Participant Information and Consent Form
Name of Project: The Quality of NeuroEndocrine Cancer Australia Facebook Support Groups
You are invited to participate in a study relating to how you perceive the quality of the online resources you use to obtain information and support for cancer. The purpose of the study is to understand how NeuroEndocrine Cancer (NEC) Facebook Support Group affects your psychosocial outcomes and intentions to continue to use these resources. That is, we want to explore the impact of the perceived quality of NEC Facebook Support Group on continuance usage intentions, health-information competence, coping, and self-care behaviours.
This study is being conducted by Basma Badreddine, +61 403 499 425, firstname.lastname@example.org, in collaboration with NEC to meet the requirements for the degree of Doctor of Philosophy (PhD) under the supervision of the Associate Professor Yvette Blount,+61 (2) 9850 8514, email@example.com of the Department of Accounting and Corporate Governance, Macquarie Business School.
This questionnaire will take about 15-20 minutes of your time. If you decide to participate, you will be asked to answer questions about how you perceive the quality of NEC Facebook Support Group, if you intend to continue accessing NEC Facebook Support Group, and the impact on psychosocial outcomes.
Your participation in this survey is entirely voluntary and anonymous. Participants cannot be identified. All information collected will remain strictly confidential and will only be used for the purpose of advancing knowledge. At any time, during or after filling out the survey, if you feel distressed you can refer to the Support Services staff for support. Support services details are provided below:
- NET Nurses can be reached on 1300 287 363
- You can also contact the NET Nurses via email on firstname.lastname@example.org
- For support services available 24/7, you can reach:
- Lifeline on 13 11 14
- Beyond Blue on 1300 22 463
- GriefLine on 1300 845 745
Thank you in advance for your contribution to this important project.
Your participation in this research will be to complete this questionnaire. Although the answers to each question are important for research, you remain free to choose not to answer any of them or to terminate your participation at any time, without having to justify yourself.
The collected data will be stored in encrypted files that will be protected by a password that only researchers will have access to. Personal data will be destroyed five (5) years after the end of the project.
Please check the box indicating that you have read the above information. You freely agree to participate in this research project and agree that the data be kept in a confidential database under the above conditions.
For any enquiries about the study, you can refer to any of the following:
- Basma Badreddine, PhD candidate, Macquarie University Business School: email@example.com
- Associate Professor Yvette Blount, Department of Accounting & Corporate Governance and Centre for Workforce Futures, Macquarie University Business School: firstname.lastname@example.org
The ethical aspects of this study have been approved by the Macquarie University Human Research Ethics Committee. If you have any complaints or reservations about any ethical aspect of your participation in this research, you may contact the Committee through the Director, Research Ethics & Integrity (telephone (02) 9850 7854; email email@example.com). Any complaint you make will be treated in confidence and investigated, and you will be informed of the outcome.