Participant Information and Consent Form
Name of Project: The Quality of BCNA Podcast Series 'Upfront About Breast Cancer'
You are invited to participate in a study relating to how you perceive the quality of the online resources you use to obtain information and support for cancer. The purpose of the study is to understand how BCNA podcast series 'Upfront About Breast Cancer' affect your psychosocial outcomes and intentions to continue to use those podcasts. That is, we want to explore the impact of the perceived quality of podcasts on continuance usage intentions, health-information competence, coping, and self-care strategies.
This study is performed in collaboration with the Breast Cancer Network Australia in Melbourne and is being conducted by Basma Badreddine, +61 403 499 425, email@example.com, to meet the requirements for the degree of Doctor of Philosophy (PhD) under the supervision of Dr. Ali Amrollahi,+61 (2) 9850 9269, firstname.lastname@example.org of the Department of Actuarial Studies and Business Analytics, Macquarie Business School.
This questionnaire will take about 15-20 minutes of your time. If you decide to participate, you will be asked to answer questions about how you perceive the quality of BCNA podcast series, if you decide to continue listening to BCNA podcast series, and the impact on psychosocial outcomes.
Your participation in this survey is entirely voluntary and anonymous. Participants cannot be identified. All information collected will remain strictly confidential and will only be used for the purpose of advancing knowledge. At any time, during or after filling out the survey, if you feel distressed you can refer to the Support Services staff for support. Support services details are provided below:
- BCNA’s Helpline can be reached on 1800 500 258, open from 9:00 am to 5:00 pm AEST Monday to Friday
- You can also contact the Helpline via email at email@example.com
- For support services available 24/7, you can reach:
- Lifeline on 13 11 14
- Beyond Blue on 1300 22 463
- GriefLine on 1300 845 745
To access other support services such as cancer information, counselling and mentoring services, financial and practice support, future planning, home help, palliative care, and others, please visit the following link: https://www.bcna.org.au/search?q=support
Thank you in advance for your contribution to this important project.
Your participation in this research will be to complete this questionnaire. Although the answers to each question are important for research, you remain free to choose not to answer any of them or to terminate your participation at any time, without having to justify yourself.
The collected data will be stored in encrypted files that will be protected by a password that only researchers will have access to. Personal data will be destroyed five (5) years after the end of the project.
Please check the box indicating that you have read the above information. You freely agree to participate in this research project and agree that the data be kept in a confidential database under the above conditions.
For any enquiries about the study, you can refer to any of the following:
- Isabella Harrison, Event Coordinator, Breast Cancer Network Australia: firstname.lastname@example.org
- Basma Badreddine, PhD candidate, Macquarie University Business School: email@example.com
- Dr. Ali Amrollahi, Department of Actuarial Studies and Business Analytics, Macquarie University Business School: firstname.lastname@example.org
The ethical aspects of this study have been approved by the Macquarie University Human Research Ethics Committee. If you have any complaints or reservations about any ethical aspect of your participation in this research, you may contact the Committee through the Director, Research Ethics & Integrity (telephone (02) 9850 7854; email email@example.com). Any complaint you make will be treated in confidence and investigated, and you will be informed of the outcome.